Although Ella has to endure countless procedures, medicines and pain every day, she is a tough little thing, and manages to nearly always keep a smile on her face, especially on some of her better days.
So for a more light-hearted post after the hospital ones, here are some photos from last weekend of Ella and Scarlett getting some cuddles, smiling, laughing, and having fun playing.
With a computer animated version of DuckTales on TV (which seems a bit sterile compared to the hand-drawn cartoons I used to watch as a kid) , Ella took up one of her usual viewing spots next to the TV cabinet.
Meanwhile, Scarlett was experimenting with less traditional vantage points, none of which included actually sitting on one of the lounges normally. Why sit on the cushioned seat when you can awkwardly straddle the armrests instead?
Or better yet, get in some painful-looking yoga exercises to make sure your fitness levels don't go downhill while sitting in front the magic picture box.
After such a strenuous workout, you want to be sure to stay well hydrated. But Scarlett had spent so much energy on the yoga, that she forgot where her mouth was. Happens to the best of us.
Scarlett: 'Hmm, something isn't quite right here...the water bottle is not quite as refreshing as I expected. Very disappointing; I'll be sure to write a complaint letter to the manufacturer.
Fortunately Sally lent Scarlett some assistance with the water bottle.
'Ah, that's much better, thank you kind water waitress. I guess I can throw my letter in the bin now.'
Ella was a bit tired, so she had some cuddles with Emily while watching the Lion King movie for the 382nd time.
Scarlett was encouraging Sally to do some leg exercises, generously volunteering to be a leg weight,which is apparently a rather amusing pastime.
After a bit more of a rest, Ella had gotten some energy back, starting a game of 'Lion'; which mostly involves roaring at other participants while chasing them around with hands out like claws.
Scarlett quickly jumped up to help Ella charge at Emily.
After a few quick swipes, Ella ran back a few steps, before advancing on Emily again while laughing hysterically.
You can see Scarlett in the background here trying to attack Sally.
Ella: 'Mum, you're supposed to kiss people on the cheek, not in their eye, silly.'
Wanting a bit more of a chase, Ella persuaded Sally to get up and join the fun.
She then scampered away, quickly followed by Scarlett holding her trusty but inconsistently reliable water bottle.
There was much hilarity as all the girls chased each other around the house.
With the taller people in the house stopping for a rest, Ella made a beeline (or lionline?) straight for me, but stopped short and started laughing instead.
After Daniel came in, she had gotten a bit tired and went back to watching the Lion King again.
Scarlett was busy doing a cool-down leg stretching routine...
...which this time included laughing uproariously and trying to eat her own foot, which is at least a lot closer to food than most of the garden materials she tends to find appealing.
Ella was getting some kisses and cuddles from Emily while she kept up with Simba's adventures.
In the meantime Scarlett had returned to her perch on the armrests of the lounges.
After Ella switched over to curling up in Sally's lap for a while, some chippies had arrived...
...which Ella usually gets stuck into fairly quickly with her high salt needs and cravings.
Scarlett was busy practicing her magic routine of trying to make a chip disappear...
...which didn't quite work. Making water appear on the table and her t-shirt instead was pretty easy though.
After dinner the girls sat back on the lounge for a while, until Sally and I had to head off.
No-one really knows what's in store for Ella this year, but we'll all try to have as much fun as we can along the way, stay positive, pray and trust in God's plan for her life, as well as Daniel, Emily and Scarlett.