Friday, 23 December 2011

Ella's Story: Hospital at home

With Ella recovering fairly well after the surgery, the medical team cleared her for having hospital at home the next day. She still needed lots of care and medications, but it was much nicer for everybody to be in a peaceful home environment.

When I dropped around in the late afternoon, she was lying on the lounge with Daniel, still looking pretty wiped out, but more alert than in hospital. My mum found a few 'Ella' and 'Scarlett' sticker books to give the girls, which she had a look at.





 As usual she was watching the Lion King, along with Anita and Zoe, with Scarlett wandering around and trying to eat her sticker books.




 She was still quite shaky and unbalanced, but she wanted to go outside in her new special backyard, so I helped her over to the cubby, where she lay down on the pile of cushions in the corner.

After a little while Emily came out to see if Ella was doing ok. Still somewhat sleepy, she and Emily sang a song. I think I need to do some more research on kids' songs; I either don't know what they are, or only know a few lines, while Ella generally knows the whole thing.





 Everyone else was having pizza for dinner, but Ella wasn't really interested in eating yet, and gingerly walked a few laps around the trampoline.


 She then got some pizza from Daniel, but only so she could use it to finger-paint a window, with Scarlett a willing accomplice.





 They decided the car should have some pizza sauce decoration as well.


Wandering over the other end of the yard, Ella went inside her cubby again, putting a shoe in front of her face for some reason, followed by reading a book.





Scarlett thought it would be fun to use Emily as a trampoline and claw her eyes out.



 After playing outside for a little while, Ella crashed again, looking very worn out while Emily held her on the lounge.



One of her medications involves some rather nasty nose drops, the administering of which isn't much fun for anybody.



 With the brief but unpleasant experience over, Ella settled back down to dozing in Emily's arms.




Daniel carried her off to bed, where she woke up a little bit more, insisting that Daniel read her a bedtime story before she went to sleep.





 She looked a bit calmer, still quite washed out, but doing relatively well, and soon drifted off again. Simply going to sleep in her own environment was a lot less stressful, without constant beeping, talking, noise, crying and coughing typical of a children's ward.


Here you can see their Christmas tree is only partially decorated, due to Ella thinking the baubles were food, and Scarlett thinking they were bouncy balls.



Wednesday, 21 December 2011

Ella's Story: Recovering after surgery.

Earlier today Ella underwent surgery to remove her adenoids and tonsils, in addition to having her throat and airway examined, to determine the amount of damage done to her swallowing, breathing and speech mechanisms from the stroke.

I went up to the hospital to see her at around 8:30, just as it was starting to get dark. 


 Exiting the lifts on Level 3, they had some nice Christmas decorations up.



 After making my way through the corridors and into the ward, I found Ella's room after a minute or two wandering around. Quietly walking in, I saw her cuddled up with Baba on her bed, watching Beauty and the Beast on her little DVD player, while Emily was sitting on a lounge, trying to download some games and applications for Ella's new ipad.




 She was still quite groggy and out of it due to the anesthetic and medications for the surgery, but she turned her head to look at me when I said hello. She mumbled something along the lines of 'Hi Rowy...you came to see me', (neither Emily or I were quite sure) then went back to watching the movie. I think she was actually doing better than expected considering the amount of time she was under a general anesthetic, and the procedures she had done.




 The nurses were busy sorting out Ella's medications for the night.


She was still in some pain from the surgery, crying and saying her tummy hurt, which was upsetting to see. But after doing some of the meds and helping her stand up for a minute for a hug, Emily softly sang a lullaby while she stroked Ella's hair, and she soon nodded off to sleep for the night.






 With Ella slumbering peacefully, Baba and Emily gave her some water through the tube. Since she was going to be staying the night, Emily gave her some tips on the best method of giving her the bolus feeds of water.



 One of the nurses came in to put the rails on Ella's bed up, leaving her looking very small in the big bed and big room.




 After bringing in some more syringes and a doing a final check of the monitors and IV drip levels, Ella's nurse was happy to leave her to sleep.



 With Baba prepared for her overnight stay and the nurse sitting by her door, Emily took a couple of photos of Ella on her phone and said goodnight, and we both quietly slipped out of the room, hoping tomorrow would be a brighter day.